its been a while

I know I know.. i should update a little more often...but i've been busy doing this!
Hope its enough to keep you happy for a while

Make an on-line slideshow at www.OneTrueMedia.com

some pictures and a prayer request

getting stronger every day

tummytime... he doesn't hate it so much anymore

yale chilled out on mom

At this time I'd like to ask all of Yale's followers to put all they can into praying for a friend. Wyatt Swanton, a fellow heart kid is very sick. He's been in Sick Kids long term and was showing signs of getting better. All of a sudden he's been having very high temperatures and nothing can get them under control. They've done multiple cultures and can't find the culprit. The Docs are worried it might be meningitis and he is having a lumbar poke soon to find out.

I don't have to tell you this is a terrible thing to happen to a baby... especially one as sick a Wyatt. Our prayers have worked to save Yale and countless other babies. Lets save one more! We know they work!

Feel free to visit Wyatt's website and leave words of encouragement. There is a link to his blog on the right hand side. Thanks so much

Tanna Tyler and Yale

HOME AGAIN!

So We brought Yale home Thursday afternoon after over three months in hospital. It felt amazing and we fell back into routine immediately! Yale is growing more and more everyday! We even caught pictures of him sitting unassisted for the real first time. We've been working on developing his muscles and he is working very hard...before you know it I'll have video of Yale walking to post here....but until then..... heres a picture we caught the day we came home!

discharged

So its official.... Yale is no longer in hospital :) YAY!
After an annoying round of antibiotics we finally got the okay to leave for good :)

I say "for good" because for Yale's birthday yesterday he got to have an overnight pass with me! It was great. I was a little apprehensive at first. I mean its been over three months since I took care of Yale overnight...and here they were just sending us off for the day with not a care in the world. Turns out the apprehension was for nothing. We had a blast and for the first time we co slept. I'd never done it before because of Yale's health issues and for fear of smothering him... but wow did we both sleep well!

Dr dipchand today during rounds said that she didn't mind if after clinic this week, if we didn't mind weekly trips to toronto, that we were clear to go home.... AH... I can't believe I'm going home... and Yale is coming and he's healthy. I mean I always knew the day would come... but now that its here its kind of a shock. So the only thing holding us back is a couple of weeks that have echos scheduled for mondays and clinics are thursday... and well I might just make a few phonecalls and get those switched around! :) So there you have it folks. Yale is well enough to go home. he's on two meds twice a day. Only his immunosupressants. oh and an antibiotic three times a week... He's eating and doesn't require any assistance with that...only on mildly thickened fluids until he can be reassessed about his vocal chords and aspiration risk.

Alas...I must go now...Yale is with me and his patience for my update has run out...:) I LOVE IT!

Happy 1st Birthday

Happy Birthday little man. Love you bunches and hope to see you soon.

Love Grandma

sorry....its been a few days

But there isn't much to talk about. As usual I've been stuck in hospital with Yale... there has been some discussion about the duration of his antibiotics because of the infection he got in his picc line. Now I think they have come to a conclussion that if Yale has two stable FK levels than we'll be allowed to go on Monday...now "Go" doesn't mean go home... just go from the hospital...

Yale had his biopsy yesterday and the biopsy looks good as well as his PAs... but there was some narrowing of the SVC (the take down from the glen) Its just something I'll watch for and they may have to do some balloning and stenting during his next biopsy...*shrug* really everything is just details,.. Yale is great... hilarious eating and play and crying.... still a very raspy voice so it'll be a very quiet spring :) not that I mind... I just want to get back to some normalcy....I haven't slept in my own bed since October.... Ugh... and I just can't wait to have that again.... but it will come.... I hope everyone has a GREAT new year...I know we will!!!! And Yale turns ONE!!!! on sunday! YIPPEE!!!!!! we made it!.... but there will be no big celebrations for us here in hospital... you just can't do it up right when there is nobody around... just me and him...*shrug* I think thats all that matters really though... we all know how hard he has fought to make it this long....
until next time......

quick update

So After Heather's visit yesterday Yale spike a fever...grrr.... luckily it is just a bug in his picc line.... but that means a round of antibiotics...so it was an optimistic goal for friday...but now we're moved to tuesday... which is fine with me... figures that the trouble wasn't over with that darned picc of his.

Yale also had a feeding study done today... and he will require thicked formula until his vocal cord works... he's not an "aspiration" risk... but there was one little trickle they saw...and so better safe than sorry....and his swallow was much more cleaner when we thickened his formula with some rice cereal... no biggie...

The biggest change is Yale's personality....Wow is he ever in good spirits now that the drainage tubes are out... OMG... Its shocking really

And a quick thank you to the Jobes and the Mitchells for Yale's gifts... they're great and unnecessary.... but they sure make him smile :)