impromtu trips to the cath lab

Well... the shoe has dropped. Luckily, we've been through worse, but I've just recieved a phone call from Dr D. Yale is going into the cath lab this Thursday. When they were in there last week they noticed high pressures in his left lung, and Dr C tried some dialation with little to no results. This is something we've known about ever since Yale's transplant. unforunately its gotten much worse. Sooooo, Yale is going to go for an MRI Thursday morning, than straight to cath lab afterwards. They are first going to see if some medicines can help to dialate the veins going to the heart, and increase the blood flow both to the lung and back from the lung to the heart. If not then they hope to be able to do some dialation and stenting. It was frightening when Dr Dipchande said that they were going to do all they could to salvage Yale's left lung, but if not, she has about 10 transplants that a living with one lung. Very frightening indeed, but we've been through so much, this is just another challenge for us.
So prayers are requested that the flow isn't totally compromised, and that Yale's lung can be slavaged.
I'll update as soon as we know.

edit for lexi

It was just a bruised brain, not a stroke. Still not good, but at least a bruise can heal. What a little bugger she is, like she hasn't scared her parents enough!

Slacking off

Okay everyone, I know I have totally been slacking off with this whole blog.... but really... there isn't all the much to report :) We've officially made it THREE MONTHS with out an admission.... Yale is doing great. We've been working with Occupational Therapy to help him with his development.... its going wonderfully.... When Melissa first came, Yale wouldn't lay on his belly and he could move or do anything and could very sporadically sit unassisted.... now he is rolling all over the place and will be crawling any day now. He continues to get up onto all fours and rock so I know its only a matter of time! And my favorite milestone that I've been itching for is.... drumroll please... Yale can now hold his own bottle!!!!! Wow... I never thought it was going to happen.

So Yale has a biopsy at the end of March...and then if everything goes well, we'll be down to monthly visits to Toronto.

Anyhoo, I've really noticed that this blog and all you readers, have really helped when I've asked for prayers and positive thoughts. Well, As some of you may know, a friend of ours, Sophia Bossenberry is still awaiting a heart transplant. Her and her parents have quickly approached the one year wait while being in the hospital. This sounds extremely terrible, but i think Sophia's wait has only been so long because of how well she is right now. As all of us know, that can change in an instant. So I'm going to ask all of you that you please pray for Sophia's heart to come and for her and her wonderful family to please get back to some semblance of normalcy.

Update: Lexi was home and doing great with her parents, but I have just learned she was life flighted to Sick Kids with what might be a stroke. I'll update when I know more!

thanks so much.... and for all the help... some pictures of Yale



Okay and for family.... if you like that family portrait...just be patient...:) don't copy and print... you're probably getting the actual version *ahem mom*

till next time!

Alexis got a heart today!

I just wanted to thank everyone that prayed for Alexis to get a heart. I just recieved the wonderful news that she go a heart today at 1:30 and is doing excellent! I am just overjoyed! Such a young family shouldn't have to go through so much, but I am sooo glad that they have a happy ending now too!

Hey everyone!

So Hi everyone...I know I haven't really been keeping up with the updates...but here I am :)

Yale is still doing amazing. He had great results from his last biopsy and doesn't have to have another until the end of March YAY! We've been having weekly visits from his occupational therapist Melissa. Yale is really starting to like her. (sorry Maggie, but he feels good now so playing is just playing to him not work)
He's now rolling all over the place and getting into all sorts of stuff.

So I'm putting out a prayer request for all the sweet little babies at Sick Kids still waiting for a heart.
Especially one little girl called Alexis. Lexi was in stepdown with Yale while he waited for his heart. She's been on milrinone as well and just hasn't been doing very well. She had an event and ended up in the CCU. She is back up on 4D now, but isn't doing well, she has a bug in her picc line now, and has been battling RSV.
Lexi is the sweetest thing. Her and Yale used to talk back and forth across the room, and we really wish she'd get a heart. She's fighting really hard, but her mom is worried she's just not going to have much fight left in her. Please pray for Alexis and her mom Raena, and her dad Garrett that they find a heart soon, and that Lexi doesn't have to suffer much longer.
Here is a picture I stoll from facebook :)

Raena is having a hard time watching her little girl go through this. I know how much you all have helped me and Yale, and I definitely think your prayers could be used to help this family. thanks a bunch

its been a while

I know I know.. i should update a little more often...but i've been busy doing this!
Hope its enough to keep you happy for a while

Make an on-line slideshow at www.OneTrueMedia.com

some pictures and a prayer request

getting stronger every day

tummytime... he doesn't hate it so much anymore

yale chilled out on mom

At this time I'd like to ask all of Yale's followers to put all they can into praying for a friend. Wyatt Swanton, a fellow heart kid is very sick. He's been in Sick Kids long term and was showing signs of getting better. All of a sudden he's been having very high temperatures and nothing can get them under control. They've done multiple cultures and can't find the culprit. The Docs are worried it might be meningitis and he is having a lumbar poke soon to find out.

I don't have to tell you this is a terrible thing to happen to a baby... especially one as sick a Wyatt. Our prayers have worked to save Yale and countless other babies. Lets save one more! We know they work!

Feel free to visit Wyatt's website and leave words of encouragement. There is a link to his blog on the right hand side. Thanks so much

Tanna Tyler and Yale