This is a Poem written by Stephanie Husted a mother of an HLHS child.
Twas the night that you joined us...all eyes were on earth.
Awaiting with joy for a most special birth.
The angel's stood ready...for each need and care,
But all of them knew... that the Lord would be there,
And I labored on... and daddy was scared,
We waited...and wondered... and hoped we'd prepared.
We knew you were special...but so very sick,
Yet hope had grown in me... with every kick.
And soon it was time...into this world you came,
I heard a soft cry... then I called out your name....
And God held your hands...while the angels stood by,
Since I could not hold you...they hushed your soft cries.
One small angel looked to the father and smiled,
"Can you truly teach hope... through such a small child"?
"An infant so helpless...a baby so new...
"Oh please tell me Lord...is this what you will do"?
God looked from the angel...to the baby's sweet face,
"Through him my young charge... they will learn about grace".
"I penned this child's journey...quite a long time ago,
"And through his great courage...such true love will grow".
"Every hair on his head has been numbered you see.."
"It's my hope that through him... they will learn to see me.
"Oh my little one with a special heart..."
"Great love will see you through.."
"See look that is your family.."
"They've been waiting for you.."
"I send you to their waiting arms...for a time we'll be apart.."
"But I'll always be with you...for I live within your heart.
And so we held you in our arms... And thanked our Lord above..
In you...we see the miracle, of His undying love.
So when it's Christmas morning,
And I watch my children play,
I'll need no great reminders,
For I see my gifts each day.