Tuesday, June 24, 2008

Its a date!

Okay.... so this will be quick and short. Surgery is officially set for July 16th. I feel a mixture of emotions, obviously fear, but shockingly enough I am also excited. I honestly went "YAY" when Amanda said that his function is good, and so we're keeping everything as it is! Next time we're at Sick Kids it will be for pre-op... WOOHOO!

Oh and I got to meet the Raepples. Dominic had his fontan and they got discharged today. I must say he sure is just as cute in person.... I cannot wait until I am in that position. To have the Fontan over and done with and no more "expected" surgeries on the horizon... Wow what a relief they must be feeleing! Congrats to you guys! Here is his blog -->http://myqtdominic.blogspot.com/

Sunday, June 22, 2008

How far we've come!

So, when thinking about Yales upcoming surgery, and thinking about how far we've come I thought I'd post a little video... one to get you all to see how far he's come...

Think about this little man when you think positive thoughts!
(after technical difficulties adding it directly to the blog, here is a link.... hope it works!


P.S. I know I run out of music before video and the date is his hybrid surgery date, not birth date... just go with it... its late and I'm tired of editing.. for his 1st birthday it will be perfect I promise!

Thursday, June 12, 2008

that sick feeling in my stomach

Here it comes again. So the story is.... Yale has an echo at Sick Kids on the 24th. If that goes well and his heart function is the same as it is currently, or increased (I wish) They will go ahead with stage 2 on July 16th 2008. If it is some how poor function, then we will change medications and try to get it better.... I however, doubt that the second will happen. Yale is looking and acting the best he ever has... I think its now or never to get this surgery done. As much as I hate to even think about what that means, I really just want to cross this bridge and have it in the past.

So funny as the girl booking the appointment is looking and explaining this too me, and she's like... cuz just after that Dr Calderone will be away for a while.. And I was like... oh so he gets to go on vacation AFTER he reconstructs Yale's heart? I wouldn't mind catching him after he comes back.... LOL

Anyhoo.... thats me, finding some sort of humour in the situation.... so everyone... I am asking we begin with the positive thoughts. We all want to see Yale get to celebrate his first birthday... that will be a miracle to say the least....

I know I have faith in his doctors, and in the staff at sick kids that everything will be done to give him the best chance at making it that far! Its my fear that the higher powers have some other plan. I know I will make peace with whatever happens... but we all know what I would CHOOSE if I had the choice....

Thursday, June 5, 2008

Some more time

Well okay this might be a little bit rambly, but I know I left everyone hanging with a surgery date in the future. The news is that there is no date set as of yet. From a rambling conversation I had with Paula, the gist I got from things is that he is doing well, but they want to make sure his heart function gets back to where it was, and give his body time to rest and to put on a bit more weight (his is at the right weight for surgery). Dr Golding wants Yale to have an echo sometime at the end of June and we will go from there. Thats about all I know. So I get to yet enjoy some good weather with Yale without an actual date looming over us like a black cloud. I mean... I know whats coming.. but not having a count down is kind of nice right now.

In the meantime, here are a few pics of Yale to get you by... :D