Wednesday, November 5, 2008

listed today

I am so sorry for not getting around to an update sooner. Its been decided to list Yale for a new heart. After presenting Yale on monday at conference, Dr Golding and the Team came to the conslusion that although Yale is stable, it is unclear how long he will stay that way, and that it is in his best interest to list him for a new heart. Now I know there a lot of questions and I have no answers. Especially to those unknown ones... like how long will it take... nobody EVER knows. But they are doing all the tests and Dr D says it is possible Yale may get any blood type heart if he hasn't developed the antibodies yet. I have yet to go through any of the teaching so I don't really know what to expect...the only major question I had was will we go home in the mean time? The answer was a resounding NO. So we are here in the hospital at least three weeks to make sure that Yale is stable on his medications, then if we are allowed to leave it will be unlikely we'd go back to London. The reasoning... they know we could get Yale to Toronto on time if we got a call for a heart at 1 am... but in the middle of rush hours? We're not up to potentially missing an available heart because we can't get Yale here in time. They said its hard enough getting air ambulance for the organ let alone both organ and recipient. So... until I speak with the social worker, I really don't know much. I'm really not leaning in any direction. Yes it would be nice to not have to stay in hospital forever, but because we can't go home to London, it would be easiest on our finances if Yale could stay on 4D... then there is always the RMH and apartments and firends and family....LOL... but... all of these things really depend on the circumstances and can't really be addressed until they need to be. So.... thats the new now...

LOL... as you can tell I've had some time to adjust to the news, and although we hoped and prayed it wouldn't come to this... now that it is I am ready to go forward with whatever we need to do to get Yale his healthy heart and get back to our lives.


Jodi said...

hunt down my sister Jennifer Riley. She's currently staying somewhere at 4D. My nephew just had a transplant in September. She may be able to answer some of your questions.
Gaberiel(Riley) had every possible complication under the sun and has pulled through everything.
Also, the David Foster Foundation has paid their rent on an apartment a few blocks from the hospital for a couple of months. This may help you after transplant as well. I believe the hospital hooked them up with the foundation.
Wishing you all the best. Hopefully Yale will recieve a heart really soon.

Anonymous said...

Hi Tanna:

As I said before, feel free to call me if you want to chat or ask questions. We'll also be at Sick Kids on the 13th and 21st if you want visitors. I'm sure you'll get lots of help from the social worker in regards to accomodations etc. If it's Samantha...she is the absolute best!! You're about to enter a whole new world with transplant.

All the best to Yale and your family. Our thoughts and prayers are with you and the most generous family that will be giving Yale the gift of life.

Joanna Mitchell

Auntie Erica said...

Keep going strong Tanna,
I miss you terribly and wish I could be standing by you.
But since I am not, please feel my hand on your shoulder holding you up when you feel weak....
Thinking of you always...
Missing you much...
lots of love

ChristophersHeart said...


Know that we are thinking of you and praying for a heart to come for Yale very fast. If there is anything you need, please let me know.
You're a strong momma and Yale is a fighter.

Anonymous said...

Praying for Yale and your family that he will receive his heart soon. This is a very hard time I can imagine. My son Kyle received his heart transplant in May. The David Foster foundation helped us out during our wait with accomodation and food, etc. They are truly incredible, your social worker should let you know. Your family is in our thoughts.

Anonymous said...

I agree Samamntha is the best! the whole team is great. there really is a lot that can be done to help you with finances.
Lilia had her transplant almost 3 years ago, and had every complicaiton you could think of and despite what they said she is a happy almost 3 year old!
If you ever need to talk you know where you can find me. I actually say you a few times while Lilia was admitted on 4D last week. :)

Keep strong I know the waiting is the hardest part!!

Jennifer Jobe