So...Yale is holding steady in 4D stepdown. I arrived this morning to see a woman from the IV team evaluating his picc line...(they broke a lumen last night....I'll get to that) anyhoo...so looking at this thing hanging from Yale's arm is far from painful...not even a nuisance really... and I step around the corner... Yale gets one alook at me.... and gives a big pout. LOL.... I could see him before he saw me and he was totally fine with what she was doing...but as soon as he saw I was there...WOW.... want a little actor he is. About that lumen... Yale's picc is a double lumen...one of those ones you don't see often...as I've been told numerously. Well yesterday as they did a cap change they couldn't get the cap off and so they used the clamps to get it off...in the process cracking the end of the lumen...GRRR... so now we're down to one lumen and one potential infection risk because they can't flush it...the flush just squirts out the side. grrr... Anyhoo.... so needless to say we're guarding the remaining lumen with out lives...no way will I consent for Yale to have that lumen removed and another placed...no way in hell!!!! :)
The other night when Yale was first back on 4d another family got a heart....! It was so surreal to see... I was excited and jealous and scared all at once...and it wasn't even my kid! Now... everyone asks about Yale's heart and when it will come and how long, and how many ahead of him on the list.... it really doesn't work that way.... there is a "list" but for pediatic heart it isn't the same sort of way... I mean if you think of it... if a 15 year old needed a heart, but he was put on the list after Yale....and a heart came but it was from a teenage itself...they wouldn't be able to give it to Yale because it wouldn't fit him... so its all really a guessing game to the families who will get one next!... kind of :) I have to say I had chills knowing that some amazing family had lost a child and were giving the gift of life to this baby and who knows how many other families.... its awe inspiring that it will be the same story that happens for Yale... how quickly everything happened.... even when I heard the whir of the helicopter coming... it definitely gave me goose bumps!!!!