Friday, June 4, 2010

Good news and other stuff!

Hey everyone! I just wanted to do some quick updates. Thanks for everyone who sent out prayers and positive vibes for Lilia. She is now home with family! There are still some issues to be dealt with.... but thank goodness she is home!

I got to visit with Tyler's niece Jordana on Wednesday. I got to see her beautiful daughters who look amazing! Her and Kyle seem in great spirits and are doing a fantastic job at parenting while being stuck in a hospital! Way to go guys!

And yesterday Yale attended clinic at HSC and was asked to be involved in some footage for the David Foster Foundation. He was filmed undergoing an echo and being scene by Dr Dipchand. Not to mention just being his cool self giving every high fives and kisses! Check out the David Foster Foundation facebook page to see some behind the scenes pictures taken by clicking on the title of this post! It'll still be a while before we see the end product, but we were glad to help out in any way!

The real news however is that Yale did great at clinic and we won't need to go back until Yale's biopsy in October! YAY!

Tuesday, June 1, 2010

Good news!!!

Lilia is going home today! Thank you so much! All the info can be found on her blog... (look to the right....) Lilia Christine.... The power of positivity!

Friday, May 28, 2010

Lilia needs our help!

It seems I only come around here now to ask for your help in sending up prayers and positive vibes for other heart babies....

Well guess what.... Thats exactly what I need! A friend of ours went in to have her Gtube opening enlarged and all hell broke lose with her lung collapsing. here is the latest update from Jennifer her mother

as of 2pm, friday.



They did the bronch and the doctor is pretty sure its her stent. they think it's moved and is blocking the airway (a little more complicated then i can explain right now). which is why her lung collapsed. Shes going in for a CT soon to check so they know for sure what they are dealing with. then they will be talking with sick kids in toronto. and deciding wehter or not to send her there, and weither or not she needs suregery.



I am so scared, they told us when they put it in if it ever moved or caused any problems we would be in big trouble.

Please everyone. We know we can help others by simply asking that they receive the healing they need! Lilia is a FIGHTER! And so are her family. This is unexpected and scary... and please please please... let us all do what we can!

Thanks in advance!

Hugs from Tanna Tyler and Yale!

Thursday, May 13, 2010

PRAYER REQUEST!

Hey everyone. I know its been ages since I've updated with info about Yale. and its is still going to be (he's great, although we keep passing a cold between each other)

This is a request for prayers and positive vibes for Tyler's niece Jordana. She found out from a 3d ultrasound that one of her twin girls has a very slow bradycardia (in the 50's) and has been in toronto for ages and they found more health issues with the other twin as well.

Well I just got the word that these beautiful little girls came into the world today. I'm sure they are at sick kids now as we speak. They are tiny little things (i think around 4 and 5 lbs) and are pretty sick. We all know that these babies are most safe while still in momma.... and now they are about to start the fight for their life.

So please, whatever it is that you did to help Yale and my family, please bring those powers again for Jordana, Kyle and their two beautiful little girls!

Thanks so much! I'll continue to update as I learn more!

Monday, April 5, 2010

Prayer Request for Asher!

Hey guys. Just wanted to call in the troops. Our friend Asher isn't doing so hot, and he really needs some prayers and positive vibes. Heather (his mom) is with him here in LHSC where he is very sick with what I would consider to be an extreme bradycardia....His whole story is here if you want to really know the scary details. Really, its terrifying. I haven't been this scared since Yale's wait for a heart. I really feel for Heather and Asher and all of their family. Thanks for all you can do!

Tuesday, March 9, 2010

The latest

SO I am so behind on the blog. I apologize. But really there isn't much news to talk about. Yale went to northern Ontario with Tyler for two weeks at the end of February. He clearly had a blast since he came home with a black eye, attitude, and the need for a new cast. Yes you heard me. Yale has a cast. I don't really know the details, but I do know that Yale took a tumble off the bed and somehow fractured his arm. The only problem is we didn't realize until about three days later. I clued in after I grabbed is arm and he lost it on me. His dad took him to emerge the next morning and to no surprise, there was a fracture. The funny thing is we waited until morning because Yale was dragging around his giant dump truck with that arm. I guess I should be perpared for his pain threshold, being a heart kid and what not. Other than that Yale is great. Completely healthy heart wise. Starting to babble more. we're working on his talking, but I think he's just going to do it in his own time. He had other things to focus on for a few years there, like staying alive, I'll give him a break on the talking.

I've attached a picture of Yale giving dad knuckles with his new cast. Its much more grubbier now.

Monday, February 22, 2010

Its been a while

So it sure has been a while since I've updated around here. Yale is doing remarkably well! our next visit is *drumroll please* not until June! WOOHOO! We got to see Mirna and Dr Kantur for clinic. Yale did very well and Dr. K's first word upon seeing Yale were. Wow, he's looking healthy. That put a grin on my face.

Yale is still quite delayed in his speech and is attending play with words, a local play group with a speech pathologist who helps us in working on signing with him, as well as his interaction with the other kiddos.

Yale is currently in northern ontario with his Dad visiting his side of the family. So if you're in Englerhart, take a run into the old towne inne. I'm sure you'll see him running around there somewhere.