Tuesday, November 9, 2010
Monday, October 4, 2010
Time for some truely good news?
So as some may or may not know, Yale's defect means the odds of me having more children with heart defects raised to 10-15 percent. I've been living in this sort of limbo where I wanted to believe the baby was fine, and at the same time, prepare myself for another heart sick baby.
I had my fetal echo today where they looked at the baby's heart. Turns out this baby's heart is "developing normally". I almost jumped across the table and kissed the cardiologist when she told me that.
I knew the odds were in my favor, but with a late loss with twins and then Yale's health I just felt like we don't fall into the normal range for odds. I am soooo excited to relax now for my pregnancy! and go into labour on my own, and not be considered high risk anymore! The best part of all! I'll get to bring a baby home.... not live with it in sick kids! I'll get to breast feed, and cuddle my newborn whenever I want, not watch it in a crib hooked up to monitors! Today is probably the best day since the day Yale got his heart transplant!!!!!!
HAPPY DANCE!!!
I had my fetal echo today where they looked at the baby's heart. Turns out this baby's heart is "developing normally". I almost jumped across the table and kissed the cardiologist when she told me that.
I knew the odds were in my favor, but with a late loss with twins and then Yale's health I just felt like we don't fall into the normal range for odds. I am soooo excited to relax now for my pregnancy! and go into labour on my own, and not be considered high risk anymore! The best part of all! I'll get to bring a baby home.... not live with it in sick kids! I'll get to breast feed, and cuddle my newborn whenever I want, not watch it in a crib hooked up to monitors! Today is probably the best day since the day Yale got his heart transplant!!!!!!
HAPPY DANCE!!!
Tuesday, September 21, 2010
Family Testimonial
I just wanted to show the video that Yale and I got to participate in for The David Foster Foundation. Once again sorry for being soooo MIA lately.... hopefully I'll get back into blogging here since Yale has a biopsy in October and we also learn about the new baby's heart health and gender in October... so lots to talk about!
David Foster Doundation Family Testimonial
David Foster Doundation Family Testimonial
Friday, July 23, 2010
Hey everyone!
So I realize that I have definitely been neglecting this blog... I think it might be alittle bit related to the fact tht Yale is doing so well :) (knock on wood) But i think I am going to do some maintenance... perhaps change it around some, new design... and start talking more about our family, and not just mister Yale.... although it will be his blog! :)
So I had my first visit with Dr Kirby yesterday. My first OB appointment for this pregnancy... and she is great! Really. I can say enough about her manner... She remembered me and remembered Yale... but didn't know about his transplant... we had a good talk about him and she asked me to bring him to our next appointment since the last time she saw him he was just over 6 weeks old. She was quick to say "i'll book you a fetal echo" and was glad we've opted for IPS screening (i just want to see the baby sooner... but the screening part is good too!) and then she wished me an uneventful pregnancy... and I just laughed and said you and me both!!! it was quick and sweet... and I am just so glad to have her again... i know if anything pops up this time, hearing it from her will be the best. She's been 100% supportive in all the decisions we made while pregnant with Yale... and I'm sure she'll do the same with this new baby...
And for those that want to know... we WILL be learning the gender... and then letting you all know what the name will be. We've pretty much got it picked, just need to iron out the spelling of it.... intrigued? long on for more!
please send your prayers to miss sophia who had her brain tumor removed the other day. It has been indeed diagnosed as cancer and she is not doing very well.... :(
So I had my first visit with Dr Kirby yesterday. My first OB appointment for this pregnancy... and she is great! Really. I can say enough about her manner... She remembered me and remembered Yale... but didn't know about his transplant... we had a good talk about him and she asked me to bring him to our next appointment since the last time she saw him he was just over 6 weeks old. She was quick to say "i'll book you a fetal echo" and was glad we've opted for IPS screening (i just want to see the baby sooner... but the screening part is good too!) and then she wished me an uneventful pregnancy... and I just laughed and said you and me both!!! it was quick and sweet... and I am just so glad to have her again... i know if anything pops up this time, hearing it from her will be the best. She's been 100% supportive in all the decisions we made while pregnant with Yale... and I'm sure she'll do the same with this new baby...
And for those that want to know... we WILL be learning the gender... and then letting you all know what the name will be. We've pretty much got it picked, just need to iron out the spelling of it.... intrigued? long on for more!
please send your prayers to miss sophia who had her brain tumor removed the other day. It has been indeed diagnosed as cancer and she is not doing very well.... :(
Thursday, June 24, 2010
Update on Miss S
I'm sure ppl are getting tired of hearing about this journey? so I'll be brief. It was papa's call from the judgement of the coorindator of the neurology department as to whether we wanted to take S home to wait for her surgery and how soon. That was yesterday I believe (lost in my days) and they came home today. S is still very quiet, not really disoriented.....at least now when she walks across the room she knew what she was going to get before walking back to the couch to lie down; we thought she was just too weak to go play or whatever and gave up to lie down but it was cross signals in her brain that was part of it. Her eyes are stable, she is trying to eat like a horse despite doc's orders to keep it slow. Her neck is VERY rigid, not likely to change until surgery, she's GAINED 4 lbs since last Friday night and we're just keeping everything very low key and non stressful for her. Everything's in place, A/C units are keeping her body temp in check, she'll co-sleep with us and I'm going to flashlight her eyes at night to check for dilation like they did in hosp, supplements are here. I think we've got it covered. If anyone thinks I've missed anything, plse let me know, she's home but by no means is this journey over for S.....the waiting is going to be a HUGE challenge for those darn test results but I'm finally confident that the team is lining everything up perfectly towards the next step to surgery. I can't bear her having to go back into surgery but she can't stay like this. Mixed emotions for sure. At least she'll be stronger by then and under sedation for hours only rather than days.
Asking for more prayers for the biopsy results quickly and cancer free! THANKS! So much for being brief...sorry!
Asking for more prayers for the biopsy results quickly and cancer free! THANKS! So much for being brief...sorry!
Some news from the Seatons....
Yale is going to be a big brother!
estimated due date of February 27th 2011 :)
estimated due date of February 27th 2011 :)
Saturday, June 19, 2010
This Poor Poor Girl
Hey everyone! I need your help again. A local mom is going through every parent's worst nightmare! Her daughter is critically ill and the future is unknown! Here is a post she put on a forum I requent...
Thanks so much!
Yes, my Miss S is in CCU; she has a brain tumor, she's had a shunt placed in the area of the mass as it was blocking vital fluids from moving through her brain and spinal cord. She is on IV fluids, is being kept sedated at least until an MRI is performed. The mass MUST be removed, they just need to have better pictures to see what they are dealing with. She has had seizures which was the only way we could tell that her situation is critical, she has been in and out of hospital for the last 2 weeks now and 4 weeks of undiagnosed vomiting as there was no fevers or nasal problems to accompany so it wasn't a virus. Her weight has dropped remarkably and it is because of the Autism that the doctors believe that she wasn't able to effectively communicate that she's been having migraine headaches, it was only once she started seizuring that they pieced that the vomiting was being cause by the tumour. If those final symptoms had not shown up the connection might not have been made by us or the medical profession and we likely would have lost our daughter. But for now I am trying to cope with the stress on no sleep for 4 weeks and trying to care for C as well and I am alone this weekend at home to tend things here. I cannot get out to do groceries so we're living on what we have available in the house until V comes home and can relieve me so I can get some food in the house and try and keep some kind of a normal existance here while my very tiny child who is now the weight of a 2 year old and not a 4 year old with her fate in God's hands as well as her team of specialists.Please Please PLEASE bring on the strength we have shown for everyone else we've prayed for. We have worked miracles in the past (look at my boy) and this family definitely need a miracle now!
I apologize if I can't be very clear, I am VERY tired and worried I'm going to lose my child; cancer in the mass has yet to be ruled out.
Thanks so much!
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