So... Yale is going up to 4D tonight. He'll remain in stepdown for as long as he is on milrinone. I can tell he is feeling better because he's giving me the cutest smiles when I'm playing peek a boo with him... and he's enjoying sitting up watching everyone coming and going. He's refusing to eat...which normally would stress me out.... LOL... but I'm just so glad he's back to himself for the time being I could care less. He's recieving is TPN still...and I guess his NG will go back in soon. :)
So amazingly strong that little man of mine. I would have stopped fighting a long time. Its so nice that all the nurses keep stopping by saying how great he's looking...which is true. He was being prepared for ecmo last week and now he's watching elmo and playing with toys. Its going to be cool when its post transplant and he will not only be back to himself, but he'll feel much better... It'll be so surreal... and I'm just that more confident now that he'll recieve a heart in time. I was worried there for a while that he wouldn't make it...that a heart wouldn't come in time...but now I know its just a matter of time... and that I should be thankful for the days we have right now. He's proven to be very fragile, and his health could change in an instant! God has big plans for this little man and I can see that more clearly now than ever!
3 comments:
God bless you all, and it is wonderful to see your spirit showing through Tanna.Know we are keeping good thoughts and prayers, you can do it.
i can't imagine the trials your having to face in supporting Yale. So here's all the support and faith i have, in hopes it gives you strength.
Take care of you....and little man Yale!
Tami -LM-
Hooray! What an uplifting blog to read this Tuesday morning.
I can feel your positivity shining through now.
It makes me want to be there to visit more than ever.
Love you's
Stay strong, postive and healthy...
now its the waiting game, a short one I am sure.
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