Okay....so frustratingly, yesterday I took time away from Yale to come and update... and the darn computer lost what I typed and they were soooo slow I just gave up....:) but now here we go!
Yale is great... his color is great, his bloodwork is great and he is all around doing great :)
It was a long day of 13 hours until we could see him again after we kissed him goodbye. Anne Dipchand came and let us know around 5pm that the heart was in and functioning better than expected, and that they just needed to stop the bleeding.... it was another 3 hours before we got to speak to Dr Calderone...and let me tell you every terrible thought runs through your head when you think it shouldn't be very long. Anyhoo Dr Calderone came to see us shortly before 8 am. He said Yale's surgery was laborious (what heart surgery isn't?) and difficult, but he deems it to be successful. It was really difficult because yale's glenn had to be taken down...which in itself would have been a long tedious surgery...I mean it took 9.5 hours to get yale's heart the way it was...and now they were just ripping the thing out. Dr C had the hardest time with the LPAs...as we all know, yale's lpa has been causing some problems...and is stented...well all that came out and it was reconstructed.... the problem is when they started the heart the pressures in his lungs were completely unbalanced..... they managed to get them a little more even....but far from great.... but they had done all they could do surgically.... time will tell if Yale will need a trip to cath lab in order to stent his lpa again.... or if there is a blockage... but we won't know for sure until they try to extubate...
Really this is all details... the point is...the heart is in...and its working better than anybody could have expected.... in fact Dr C told Yale's nurse he never saw a heart jump like that... LOL...Yale's vessels are going to have to get used to the new pressures.... his veins before had like a trickle of blood running through them, and now its like a fire hose... :)
Oh ya..Dr C doesn't know...but he thinks there was damage to one nerve that controls his left vocal cord. He couldn't really see and he repaired where the throught the dmage was....but only time will tell.... he says in a year if Yale's voice is still hoarse...we'll know its damaged... but its something we'll sacrifice for a healthier heart!
So Yale on his 1st day post op had a central line taken out.... the majority of his meds weaned down....and opened his eyes! :) We were told they were going to leave his muscle relaxants for a while because of how long his pump run was and they didn't want him moving all about... but after the late rounds, they wanted to see him start to wake up.... and so far he is totally neurologically appropriate.... he recognized tylers voice as he was walking into the room and moved his head to look at him... he was rubbing his eyes and even went for his tube before he was restrained... YAY
And man is he pink! lol...
I wanted to take the time to ask everyone to please pray for the donor family that they find some sense of peace at this terrible time. Its like I wish they could see the amazing thing they've done....and not just my child...there was a kid getting a kidney transplant at the same time, who's family was there waiting in the waiting room...:) two lives forever changed because that family in its worst time was generous enough to let they're loss not be for nothing. Every year from now on, on December the 10 I will be doing an act of kindness in honor of the donor and their family. There are no words to express what they have done for my family...and my beautiful little boy...
God is great... and he works in miraculous ways..... and don't worry folks... picture will be coming early next week! :)
now lets all celebrate!