a little bit of reassurance.

Okay.
We are here in Toronto. Dealing with the funtion team. Right now they are working on figuring out which one of Yale's meds actually work and which ones don't. Apparently its not the way things are done in Toronto that the child is placed on milrinone, while still on old function meds as well as a new oral med. No wonder they felt that Yale was dependant on the milrinone in London. He was on so many other funtion meds that they felt they had pushed his blood pressure as far as it can go. So now that we are in Toronto with a team of doctors that specialize in function, they are going to get things sorted out before they begin the transplant work up. In an almost unrealistic haze I got the look and the words uttered... he may not even need to be listed any time soon. I personally, don't think that is the case, but I am positive they can get him stable enough that he can wait at home. Granted he is on milrinone and that could be why he is sooooo stable... but thats what they're going to figure out right?
I don't know all the details, they are just looking at everything that has happened in the past and Christine his APN for funtion will get back to me later today with a plan of attack... all I know so far is a pic line is going in.... which is good... and we can stop torturing him with iv lines and special pokes and everything...
So its not emergency transplant work up... which I may have kind of hinted to because I was so scared and concerned... but as per usual... the team here in Toronto are so calm in this position...it lends me some strength... I have to admit I was really getting scared there that I may not go home again for months... and that Yale was really more sick that I had any ability to know... but all my worries have been eased....for the time being...
I was just saying to, that its so wierd when you first find out you have a sick kid and he's going to be coming here a lot and people always tell you... well its the best place for him.... well really not only is it the best place for him...its the best place for the parents. I mean I know the doctors and staff in London are great at what they do... but I just don't have the confidence in them, like I do here in Toronto... I know everything is going to be okay... no matter what turn the road takes... These people have kept him alive through worse situations...

Its strange how many people are here from London.... LOL... and little Abby Knight is here dealing with reflux and retching... such a sweetie she is... and as much as I don't want to meet people under these circumstances... its nice as well.... we've been supporting each other since the day they had surgery together, its only fitting we're here together again.

I'll be back tomorrow with some more details... until then...rest easy that Yale is sleeping eatting and even laughing... :)