Hiya everyone :)
Today has been a great day to say the least. This morning Tyler and I walked in to see Yale in a "big boy bed". He is in an actual crib now. I spent the day sitting by Yale's bedside trying to subside the guilt I have been having about spending so much time away at the RMH getting sleep and naps in. Today I just stuck around and boy am I ever glad I did. We made so many strides closer to home I don't know where to begin.
I guess I will start with the worst of the news. I spoke with the neurologist and she says that it is good that Yale's seizures are under control, but that he may have some developmental delays. There aren't any guarantees as to what is going to happen, but we will have early intervention coming around right from the get go to diagnos any issues as they arrise. I personally don't think there is much to worry about... Yale is acting like a completely normal baby.
Now with the good news. Yale has almost all of his lines out. Everything is out except the line in his neck that is giving him his nutrients because his feeds aren't even close to being up to par. He had his pacing wires taken out today but the surgeon wasn't happy with the drainage tube so he wants it to stay a few more days. He isn't on any oxygen anymore. The only dip he had in his sats was tonight while I was holding him he started retching and they dropped to the 50s but quickly came back up to the high 80's. He is off his heparin (anti coagulant) and will be beginning his new one that is an injectible. One that we will be giving him until his next surgery.
So basically everything that was keep us from going upstairs to the step down unit is gone. Now its just another case of waiting for a room to come available. Since he is on his new thinner the majority of his care will be up to us. Once he is in his own private room, I will be staying overnight with him while Ty stays here. Maybe we'll even take turns with Yale at night and the other getting a good rest here at the RMH. Going up to 4D is a great thing as it is the step down unit and the next step after that is going home :D Now my oh my am I ever excited for that!
Oh yeah.... here is a picture of Yale his first time in clothes. So many leads are gone all thats left can fit through the snaps. Doesn't he look like such a normal baby now? He sure is acting like one!